My mother was diagnosed with Stage IV Cholangiocarcinoma (bile duct cancer) in March, 2013. She died at home on June 7, 2014, with her husband and me by her side. This memoir is all about choosing to caregive my mother (and father at times) when I was probably my mother's least likely choice for caregiver. It's been a journey. Please join me.
16 January 2025
A Visit from Former Neighbors, 2014
15 January 2025
The DNR, Funeral Planning, and Time for Me
The responses I received from my friends to this post were both heartfelt and expansive. Some of my friends went into great detail on how they handled their own parent's DNR and then segued into how their parent sat down to plan their own funerals. My mother did write her obituary, but she was certain no one would come to her funeral or memorial service, so she vetoed that idea. Hospice had other plans, though, and we did get to enjoy a service months after she died. We lost her obituary, though. That's another story.
The cardiologist was a contentious issue, because hospice wasn't happy with the number of visits that he wanted my mother to add to her schedule. Hospice, at that time and place, was into providing palliative care to make the patient comfortable. The cardiologist was intent on keeping my mother alive, which was going to prove to be a losing battle.
Interestingly, both the cardiologist and hospice agreed that my mother should continue to see her nephrologist, the doctor who specialized in the diagnosis and treatment of kidney disease. I think hospice felt it would be good to keep tabs on that one kidney mom had to know more in advance about when her kidney might give up the ghost. I agreed. Cartainty in the face of uncertainty, for me, was vital at the time. That was a healthier compromise for us all.
Another friend wanted me to find a massage therapist for me, not for my mother. But, as I told her, anytime I left the house, I could count on my mother having an emergency situation. I was thankful for mobile phones, but I still didn't have much freedom.
The one joy I allowed myself to have in my trips back and forth between Virginia and home was to stop at the Blenko Glass Factory in Milton, Cabell County, West Virginia. I would pick up one piece, resulting in several dozen pieces that I eventually sold on eBay. The piece I purchased on my last trip to Virginia that ended with mom's death was a rare one. White frosted glass with dimples. I still have that piece.
I took the photo above during one pit stop at Blenko. It was a very colorful place, and I always enjoyed browsing all the interesting shapes and textures. I do miss those visits.
14 January 2025
Some Days are Quiet
13 January 2025
The Unwanted Bed Wedge and Donations
The wedge was blue to match the bedroom walls, removeable fabric-covered foam, about 27° angle, and it took up more than 1/2 of my parents' queen-sized bed. When mom used it, she said the bottom of her spine hurt. I knew what she meant, and that position wasn't the best for her, or for anyone for that matter. But, since hospice ordered it and my parents didn't pay for it, they kept it.
Since that wedge stayed past dad's demise, it was up to me to decide what to do with that durn thing. I donated it. I hope it found a good home.
Speaking of donations, plan now to decide what you want to pass on to your friends, family, children, etc. and which things need to be donated. I had to make those decitions alone for both parents, as my siblings live out west and weren't part of the day-to-day plans and outcomes regarding either parents' deaths. My parents didn't say a word about most of their items, and I didn't know to ask. I wish I did. My life would be so much easier.
Even now, many of my parents' belongings are sitting quietly down in my basement, waiting for me to decide what to do with them.